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Welcome to angelmanwa.com.au
Angelman Syndrome Association of Western Australia (Inc)
OUR MOTTO
- ASA of WA, supporting, informing and advocating for Angelman Syndrome families.
VISION AND MISSION
- Our mission is to support, inform, educate, network, and advocate for families with a child with Angelman Syndrome
OUR SCOPE
- To establish support systems for people with Angelman Syndrome, their families and other associated people.
- To source, provide and arrange advocacy on behalf of people with Angelman Syndrome, their families and other associated people.
- To gather and disseminate information about Angelman Syndrome and related matters for the benefit of families of people with Angelman Syndrome and other interested organisations and individuals.
- To educate the families of people with Angelman Syndrome, the medical and educational communities, interested organisations and individuals, and the general public about the diagnosis, treatment and management of Angelman Syndrome.
- To schedule, co-ordinate and encourage social functions to engender the networking of families and promote communication, information and knowledge transfer within the Angelman Syndrome community.
- To foster research activities on the diagnosis, treatment, management and prevention of Angelman Syndrome including but not limited to the study of genetic imprinting, hypopigmentation, craniofacial and neuro-anatomic associations, appropriate drug therapy, hyperactivity, sleep disorders, family stress, coping mechanisms and communication options for non-verbal people.
- To raise funds for the promotion and attainment of the above objectives.
Latest News
Clinical summary of breakthrough in Angelman syndrome research by Professor Bernard Dan. 7 Feb 2012 | Posted On: 12/02/2012Genetic Mechanisms which can cause Angelman Syndrome
Angelman syndrome is caused by the lack of expression of a sm ... [ read more ]
